Vol 33 No 1 (2014)
Speech
How to Cite
Shreya Kothari, & Rohini Chand-Mall. (1). Assessment of quality of life in individuals with dysphagia: a questionnaire in Marathi. Journal of All India Institute of Speech and Hearing, 33(1), 39-50. Retrieved from http://203.129.241.91/jaiish/index.php/aiish/article/view/779
Abstract
The study aimed at developing a questionnaire for assessing quality of life in individuals with dysphagia. The study was carried out in two phases; rst phase included preparation of a questionnaire in English which was later translated to Marathi using forward and backward translation. In the second phase, the developed questionnaire was administered on thirty-ve adults with dysphagia. Item analysis was performed on scores obtained for each statement of the questionnaire by individuals with dysphagia. Eight
items required deletion after inter-item correlation leaving 47 statements in the nal questionnaire, Dysphagia Quality of Life Questionnaire in Marathi (D-QOL-QM), which were divided into four sections; functional, eating, psychosocial and, physical section. Overall cronbach's alpha coecient was very high (a=0.93) which shows that the questionnaire
has good reliablity. Results on Pearson's correlation showed good internal consistency and highly signicant moderate to high correlation for sections of questionnaire. This study provides a reliable clinical tool, D-QOL-QM, for assessing impact of dysphagia on individual's life in Indian scenario.
References
Chaukar, D. A., Das, A. K., Deshpande, M. S., Pai, P.
S., Pathak, K. A., Chaturvedi, P., Kakade A. C., Hawal-
dar, R. W., & D'Cruz, A. K. (2005). Quality of life of
head and neck cancer patient: validation of the Euro-
pean organization for research and treatment of cancer
QLQ-C30 and European organization for research and
treatment of cancer QLQ-H&N 35 in Indian patients.
Indian Journal of Cancer,42 (4), 178-84.
Chen, A. Y., Frankowski, R., Bishop-Leone, J., Hebert, T.,
MCD, Leyk, S., Lewin, J., & Goepfert, H. (2001). The
Development and Validation of a Dysphagia-Speci c
Quality-of-Life Questionnaire for Patients with Head
and Neck Cancer-The M. D. Anderson Dysphagia In-
ventory. Archives of Otolaryngology Head and Neck
Surgery, 127(7), 870-876.
Deleyiannis, F. W., Weymuller, E. A., & Coltrera Jr, M.
D. (1997). Quality of life of disease-free survivors of ad-
vanced stage (III or IV) oropharyngeal cancer. Head &
Neck, 19(6), 466-73.
Dwivedi, C., Rose, S., Roe, J. W., Khan, A. S., Pepper,
C., Nutting, C. M., Clarke, P. M., Kerawala, C. J., Rhys-
Evans, P. H., Harrington, K. J. & Kazi, R. (2010). Vali-
dation of the Sydney Swallow Questionnaire (SSQ) in a
cohort of head and neck cancer patients. Oral Oncology,
46(4),10-14.
Ekberg, O., Hamby, S., Woisard, V., Wuttge, H. A., & Or-
tega, P. (2002). Social and psychological burden of dys-
phagia: its impact on International classi cation of dis-
ability and health, World Health Organization diagnosis
and treatment. Dysphagia, 17, 139-146.
Gillespie, M. B., Brodsky, M. B., Day, T. A., Lee, F. S., &
Martin-Harris, B. (2004). Swallowing-related quality of
life after head and neck cancer. Laryngoscope, 114(8),
1362-1367.
Guillemin., Bombardier., & Beaton, (1993). Cross-culture
adaptation of health- related quality of life measures:
literature review and proposed guidelines. Journal of
Epidemiology, 47(12), 1465-6.
Gustafsson, B., & Tibbling, L. (1991). Dysphagia: an un-
recognized handicap. Dysphagia, 6, 193-9.
Kumar, R.B., & Bhat, J. S. (2012). Manipal Manual for
Swallowing Assessment. Manipal University Press, Ma-
nipal, India.
Kwok, T., Pan, J. H., Lo, R., & Song, X. (2011). The in-
uence of participation on health-related quality of life
in stroke patients. Disability and Rehabilitation, 33, 21-
22.
Kwok, T., Wong, R.S., Kwong., Mok., & Kai, ^A
(2006).
Quality of life of stroke survivors: a 1-year follow-up
study. Archives of Physical Medicine and Rehabilita-
tion, 87(9), 1177-82.
Leow, L. P., Huckabee, M. L., Anderson, T., Beckert,
L.(2010). The impact of dysphagia on quality of life
in ageing and Parkinson's disease as measured by the
swallowing quality of life (SWAL-QOL) questionnaire.
Dysphagia, 25(3), 216-20.
Maclean, J., Cotton, S., & Perry, A. (2009). Dysphagia Fol-
lowing a Total Laryngectomy: The E ect on Quality of
Life, Functioning, and Psychological Well-Being. Dys-
phagia, 24(3), 14-321.
Manor, Y., Giladi, N., Cohen, A., Fliss, D. M., & Cohen,
J. T. (2007). Validation of a swallowing disturbance
questionnaire for detecting dysphagia in patients with
Parkinson's disease. Movement Disorders, 22(13), 1917-
21.
Marcy, A., Ritter-Sterr, C., Shirley, R. N., & Lansky, B.
(2006). A performance status scale for head and neck
cancer patients. Cancer, 90(3), 564-569.
McElhiney, J. et. al. (2009). The Mayo Dysphagia
Questionnaire-30 - MDQ-30. Dysphagia, 25(3), 221-
30.
McHorney, C., Robbins, J., Lomax, K., Rosenbek, J., C.,
Chignell, K., Kramer, A. E., & Bricker, D. E. (2000).
The SWAL-QOL Outcomes Tool for Oropharyngeal
Dysphagia in Adults: I. Conceptual Foundation and
Item Development. Dysphagia, 15, 115-121.
McHorney, C., Martin. , Harris, B., Robbins, J., & Rosen-
bek, J. (2006). Clinical validity of the SWAL-QOL and
SWAL-CARE outcome tools with respect to bolus
ow
measures. Dysphagia, 21(3), 141-148.
McHorney, C., Robbins, J., Lomax, K., Rosenbek, J.,
Chignel, K., Kramer, A., & Bricker, E. (2002).
The SWAL-QOL and SWAL-CARE outcomes tool for
oropharyngeal dysphagia in adults: documentation of re-
liability and validity. Dysphagia, 17(2), 97-114.
Peto, V., Jenkinson, C., Fitzpatrick, R., & Greenhall, R.
(2009). The development and validation of a short mea-
sure of functioning and well being for individuals with
Parkinson's disease. Dysphagia, 24(3), 314-21.
Plowman-Prine, E. K., Sapienza, C. M., Okun, M. S., Pol-
lock, S. L., Jacobson, C., Wu, S. S., & Rosenbek, J.
C. (2009). The relationship between quality of life and
swallowing in Parkinson's disease. Journal of Movement
Disorder Society, 18, 637-645.
Silbergleit, S., Jacobson, B., & Johnson (2012). The Dys-
phagia Handicap Index: Development and Validation.
Dysphagia, 27, 46-52.
The WHOQoL Group (1995). The World Health Organisa-
tion WHOQoL-BREF Quality of Life Assessment. Psy-
chological Medicine, 28, 551-558.
Threats, T. (2007). Use of the ICF in Dysphagia Man-
agement. Seminars in Speech Language, 28(4), 323-
33.
Welsh, M.,McDermott, M. P., Holloway, R. G., Plumb, S.,
Pfei er, R., & Hubble, J. (2003). Parkinson Study
Group: Development and testing of the Parkinson's dis-
ease quality of life scale. Movement Disorder, 18(6),
637-45.
Woisard, V., & Lepage, B. (2010). The \Deglutition Handi-
cap Index" a self-administrated dysphagia-speci c qual-
ity of life questionnaire: temporal reliability. Revue de
laryngology otology, 131(1), 19-22.
S., Pathak, K. A., Chaturvedi, P., Kakade A. C., Hawal-
dar, R. W., & D'Cruz, A. K. (2005). Quality of life of
head and neck cancer patient: validation of the Euro-
pean organization for research and treatment of cancer
QLQ-C30 and European organization for research and
treatment of cancer QLQ-H&N 35 in Indian patients.
Indian Journal of Cancer,42 (4), 178-84.
Chen, A. Y., Frankowski, R., Bishop-Leone, J., Hebert, T.,
MCD, Leyk, S., Lewin, J., & Goepfert, H. (2001). The
Development and Validation of a Dysphagia-Speci c
Quality-of-Life Questionnaire for Patients with Head
and Neck Cancer-The M. D. Anderson Dysphagia In-
ventory. Archives of Otolaryngology Head and Neck
Surgery, 127(7), 870-876.
Deleyiannis, F. W., Weymuller, E. A., & Coltrera Jr, M.
D. (1997). Quality of life of disease-free survivors of ad-
vanced stage (III or IV) oropharyngeal cancer. Head &
Neck, 19(6), 466-73.
Dwivedi, C., Rose, S., Roe, J. W., Khan, A. S., Pepper,
C., Nutting, C. M., Clarke, P. M., Kerawala, C. J., Rhys-
Evans, P. H., Harrington, K. J. & Kazi, R. (2010). Vali-
dation of the Sydney Swallow Questionnaire (SSQ) in a
cohort of head and neck cancer patients. Oral Oncology,
46(4),10-14.
Ekberg, O., Hamby, S., Woisard, V., Wuttge, H. A., & Or-
tega, P. (2002). Social and psychological burden of dys-
phagia: its impact on International classi cation of dis-
ability and health, World Health Organization diagnosis
and treatment. Dysphagia, 17, 139-146.
Gillespie, M. B., Brodsky, M. B., Day, T. A., Lee, F. S., &
Martin-Harris, B. (2004). Swallowing-related quality of
life after head and neck cancer. Laryngoscope, 114(8),
1362-1367.
Guillemin., Bombardier., & Beaton, (1993). Cross-culture
adaptation of health- related quality of life measures:
literature review and proposed guidelines. Journal of
Epidemiology, 47(12), 1465-6.
Gustafsson, B., & Tibbling, L. (1991). Dysphagia: an un-
recognized handicap. Dysphagia, 6, 193-9.
Kumar, R.B., & Bhat, J. S. (2012). Manipal Manual for
Swallowing Assessment. Manipal University Press, Ma-
nipal, India.
Kwok, T., Pan, J. H., Lo, R., & Song, X. (2011). The in-
uence of participation on health-related quality of life
in stroke patients. Disability and Rehabilitation, 33, 21-
22.
Kwok, T., Wong, R.S., Kwong., Mok., & Kai, ^A
(2006).
Quality of life of stroke survivors: a 1-year follow-up
study. Archives of Physical Medicine and Rehabilita-
tion, 87(9), 1177-82.
Leow, L. P., Huckabee, M. L., Anderson, T., Beckert,
L.(2010). The impact of dysphagia on quality of life
in ageing and Parkinson's disease as measured by the
swallowing quality of life (SWAL-QOL) questionnaire.
Dysphagia, 25(3), 216-20.
Maclean, J., Cotton, S., & Perry, A. (2009). Dysphagia Fol-
lowing a Total Laryngectomy: The E ect on Quality of
Life, Functioning, and Psychological Well-Being. Dys-
phagia, 24(3), 14-321.
Manor, Y., Giladi, N., Cohen, A., Fliss, D. M., & Cohen,
J. T. (2007). Validation of a swallowing disturbance
questionnaire for detecting dysphagia in patients with
Parkinson's disease. Movement Disorders, 22(13), 1917-
21.
Marcy, A., Ritter-Sterr, C., Shirley, R. N., & Lansky, B.
(2006). A performance status scale for head and neck
cancer patients. Cancer, 90(3), 564-569.
McElhiney, J. et. al. (2009). The Mayo Dysphagia
Questionnaire-30 - MDQ-30. Dysphagia, 25(3), 221-
30.
McHorney, C., Robbins, J., Lomax, K., Rosenbek, J., C.,
Chignell, K., Kramer, A. E., & Bricker, D. E. (2000).
The SWAL-QOL Outcomes Tool for Oropharyngeal
Dysphagia in Adults: I. Conceptual Foundation and
Item Development. Dysphagia, 15, 115-121.
McHorney, C., Martin. , Harris, B., Robbins, J., & Rosen-
bek, J. (2006). Clinical validity of the SWAL-QOL and
SWAL-CARE outcome tools with respect to bolus
ow
measures. Dysphagia, 21(3), 141-148.
McHorney, C., Robbins, J., Lomax, K., Rosenbek, J.,
Chignel, K., Kramer, A., & Bricker, E. (2002).
The SWAL-QOL and SWAL-CARE outcomes tool for
oropharyngeal dysphagia in adults: documentation of re-
liability and validity. Dysphagia, 17(2), 97-114.
Peto, V., Jenkinson, C., Fitzpatrick, R., & Greenhall, R.
(2009). The development and validation of a short mea-
sure of functioning and well being for individuals with
Parkinson's disease. Dysphagia, 24(3), 314-21.
Plowman-Prine, E. K., Sapienza, C. M., Okun, M. S., Pol-
lock, S. L., Jacobson, C., Wu, S. S., & Rosenbek, J.
C. (2009). The relationship between quality of life and
swallowing in Parkinson's disease. Journal of Movement
Disorder Society, 18, 637-645.
Silbergleit, S., Jacobson, B., & Johnson (2012). The Dys-
phagia Handicap Index: Development and Validation.
Dysphagia, 27, 46-52.
The WHOQoL Group (1995). The World Health Organisa-
tion WHOQoL-BREF Quality of Life Assessment. Psy-
chological Medicine, 28, 551-558.
Threats, T. (2007). Use of the ICF in Dysphagia Man-
agement. Seminars in Speech Language, 28(4), 323-
33.
Welsh, M.,McDermott, M. P., Holloway, R. G., Plumb, S.,
Pfei er, R., & Hubble, J. (2003). Parkinson Study
Group: Development and testing of the Parkinson's dis-
ease quality of life scale. Movement Disorder, 18(6),
637-45.
Woisard, V., & Lepage, B. (2010). The \Deglutition Handi-
cap Index" a self-administrated dysphagia-speci c qual-
ity of life questionnaire: temporal reliability. Revue de
laryngology otology, 131(1), 19-22.